Our Details

The Northern Ireland Rare Disease Partnership
2 William Street
Newtownards
Northern Ireland
BT23 4AH

Phone: 07902813198
Email: info@nirdp.org.uk
Web: www.nirdp.org.uk

Registered Charity Number: NIC105261
Category: Health Advice

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The Northern Ireland Rare Disease Partnership

We are a non for profit organisation and a Northern Ireland Registered charity bringing together those living with a rare disease and the organisations representing them; clinicians and other health professionals; researchers and producers of specialist medicines and equipment; health policy makers and acedemics.

Our vision is that no one should be disadvantaged because of the rarity of their condition.

We wor constructively with stakeholders and service deliveryorganisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.

To achieve this we work closely with the Northern Ireland Department of Public Health, Health and Social Care Board, Public Health Agency and the Patient Client Council and with Patient Representitive Organisations in the UK (Genetic Alliance UK, Unique) and Europe (EURORDIS), as well as with a wide range of condition specific groups and organisations.

We are keen to increase our network of interested organisations and people. If you are affected by, or care for someone with a rare disease in Northern Ireland, or are concerned with rare disease issues as a clinician, health or social care professional, researcher or industry member and would like to know more please get in touch.

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